Zachary had us laughing so hard tonight that I just had to share. He loves jokes, but doesn't really seem to get why most of them are funny. He tries telling them, but again, usually doesn't make any sense. It doesn't stop him from cracking up though. And I should add that most of his jokes are about passing gas, because what else do 5 year old boys find funny?? Usually he just grosses me out, but tonight he was funny.
Z: I have good news and I have bad news.
Me: Whats the good news?
Z: The good news is that I pooted. No wait, let me try that again...
Me: Okay.
Z: Mommy ask what the good news is again.
Me: OK, what is the good news?
Z: I pooted. No...uh, wait, I messed up again!
You get the point. In the end, it was supposed to go:
Z: I have good news and I have bad news. The good news is I pooted.
Me: Well whats the bad news??
Z: It smells really bad. Bwahahahaha!
Sorry if you think that's crude(it was) but it was hilarious how funny he was trying to be!
Thursday, April 30, 2009
Tuesday, April 28, 2009
Yep, we are that boring!
Nothing new to post here! Things have been extremely uneventful here. We have been enjoying the sun and warm weather every chance we get. Lucy enjoys sunbathing in the stroller while Mommy walks off those Christmas cookies and Easter turkey. Her skin seems a bit rashy and scratched up, but so far its not terribly aggravating.
No news is good news!
Thanks for checking in on us!
No news is good news!
Thanks for checking in on us!
Wednesday, April 15, 2009
Blech
Ugh. Lucy is flairing and I have no idea why. She seemed okay Monday even though she woke up a couple times Sunday night, but since then shes been up every night and irritable most of the day. This morning she got up, played and then had a HUGE diaper blowout. It was gross and totally unexpected because, to the best of my knowledge, she hasnt had anything to eat. Her formula intake is still up and down, and completely unpredictable. Some moments shes totally fine, and others shes going crazy. Hopefully it will go away!!
Sunday, April 12, 2009
Happy Easter!
Hope it was a good one for everyone! Ours was great. We took the kids over to my parents on Saturday for an Easter egg hunt- which the kids LOVED! Unfortunately for Lu, she didn't take her medication on Saturday no matter how hard I pushed her to take it, so she was up all night long with her belly. By Sunday morning she and mommy were pretty tired. She did okay most of the day but went out with a tantrum by Sunday afternoon and by 4:30 she had only drank about 10 oz of formula. I got a few extra ounces in her before bed, to top her off at nearly 20 oz for the day.
We got some great pics to share! Take a look below!!
We got some great pics to share! Take a look below!!
Wednesday, April 8, 2009
A little bit happy, a little bit sad
I spoke with Lucy's doctor yesterday about our future plans with food. We've made the decision that further food trials will be put off until August at the least. At that time we will repeat all of Lucy's allergy testing, blood work, and get a weight check before making the final decision to move forward.
I feel relieved we don't have to do anymore for a while. All the anxiety about her health and weight can go to the back of my mind and we can focus on normal things like summer vacations.
On the flip side I feel sad that this year it is likely we will make little progress with food and Lucy will move past her 3rd birthday with no food. Every year that passes with a strict elemental formula diet, there is a greater and greater chance Lucy will not get any food as she moves past an age that doctors would expect her to grow out of anything. The immune system is presumed to have met its full maturity by age 3, and so often, the defects that are in the immune system by that time will remain there most likely forever(or at least long term). Also, for every year that passes Lucy's required formula intake goes up and up to maintain growth and it will become less and less likely that she can take in that amount. At this time Lucy doesn't take in the medically recommended amount as it is, yet somehow manages to stay on her growth curve. A G-tube seems more and more like an inevitable and eventual probability in her future.
For now, I will remain pleased that Lucy has already done far better than the majority of children with her condition. Most of her days are pain free and she enjoys what an average toddler does- that is a blessing and I can't take that for granted. I can see things from the positive side here too. :)
I feel relieved we don't have to do anymore for a while. All the anxiety about her health and weight can go to the back of my mind and we can focus on normal things like summer vacations.
On the flip side I feel sad that this year it is likely we will make little progress with food and Lucy will move past her 3rd birthday with no food. Every year that passes with a strict elemental formula diet, there is a greater and greater chance Lucy will not get any food as she moves past an age that doctors would expect her to grow out of anything. The immune system is presumed to have met its full maturity by age 3, and so often, the defects that are in the immune system by that time will remain there most likely forever(or at least long term). Also, for every year that passes Lucy's required formula intake goes up and up to maintain growth and it will become less and less likely that she can take in that amount. At this time Lucy doesn't take in the medically recommended amount as it is, yet somehow manages to stay on her growth curve. A G-tube seems more and more like an inevitable and eventual probability in her future.
For now, I will remain pleased that Lucy has already done far better than the majority of children with her condition. Most of her days are pain free and she enjoys what an average toddler does- that is a blessing and I can't take that for granted. I can see things from the positive side here too. :)
Sunday, April 5, 2009
Havent made the call yet
I know the last time I posted I promised to update once I had called the specialist, but I haven't done that yet. Poppa died last week(as most know) and I spent the week arranging babysitters and searching the mall for an uncomfortable black outfit to wear.
I am pretty new to the funeral "circuit" I guess you would say. I only attended my first one when Zach's mother died just a few years ago. I am still trying to get a grasp on this whole funeral thing at this point.
I hate funerals. Not that anyone enjoys them, but I suppose a significant number of people take great solace in their attendance. But not me, I hate them, I really do. I have never attended one that brought me an ounce of peace regarding death. I sit roughly 10 feet from the vacated vessels of what was once a loved family member, struggling with every breath not to leak snot and tears all over an expensive black outfit that I will surely only wear again when someone else dies.
First, I sat there and thought only about Granny, and how she had to get up that morning without her better half. After nearly 60 years of marriage how do you crawl out of bed knowing that the person your whole life has been built upon is no longer there? How do you face your own existence anymore? I just cant figure out how she does it. I have been married a mere 6 years and can't imagine not waking up to my husband everyday. If my husband passed away I am quite certain that I would need copious amounts of medication to coax me from my bed. Family members would have to approach my bed calmly and quietly with an outstretched handful of Xanex in the same way you feed the skittish goats at the petting zoo.
Growing up, my sister had these two guinea pigs. Disgusting rodents, but that's not my point. They were soul mates. They ate together, ran on their little wheel together, and dug in their cedar shavings together. A happy couple. But one day, one of the pigs reached the end of his road and died from some sort of natural causes. The other guinea pig, although healthy, up and died within a few days. We always agreed that thing died from a sheer broken heart- and I can see why. If I were married to Zach for 60 years, surely it would be easy to suddenly perish from "unidentifiable" causes within 48 hours.
Second, I couldn't help but sit and think about my own life- who I have/will impact, and whether or not I have the relationships I want with the people I want. And inevitably, I see the negative. I can only think- I need to be a better wife, a better mother, a better sister, a better whatever my relation is to you. I think about family members that I wish would come around more often, so that I may have the opportunity to miss them at the least. I mean, after all what if I up and died tomorrow??
No, no peace is gained for me at a funeral service. I develop paranoia that any one of my family members could drop dead at any moment and leave me all alone. I start picturing my own funeral and frankly don't like the the thought of everyone I have ever known looming over my body, saying "She was a good woman.", and that's presuming that is what they would say.
But then again, some good does come from spending an afternoon hearing and/or saying over and over "I am sorry for your loss." Sitting in such sadness can open a person's eyes to so many things.
"I walked a mile with Pleasure,
She chattered all the way;
But left me none the wiser
For all she had to say.
I walked a mile with Sorrow,
And ne'er a word said she;
But, oh, the things I learned from her
When sorrow walked with me"
So maybe that is the peace I gain from a funeral- a chance to reflect, pray, and find renewal within my own self and my relationships. A reminder that life is a gift and that it should be treated as such.
Anyway, if you made it through all that, I am sorry I just wasted a minute of your precious gift that you can't get back.LOL.
I am hoping to put in that call to Lucy's doc in the morning and I will update once I hear back!
I am pretty new to the funeral "circuit" I guess you would say. I only attended my first one when Zach's mother died just a few years ago. I am still trying to get a grasp on this whole funeral thing at this point.
I hate funerals. Not that anyone enjoys them, but I suppose a significant number of people take great solace in their attendance. But not me, I hate them, I really do. I have never attended one that brought me an ounce of peace regarding death. I sit roughly 10 feet from the vacated vessels of what was once a loved family member, struggling with every breath not to leak snot and tears all over an expensive black outfit that I will surely only wear again when someone else dies.
First, I sat there and thought only about Granny, and how she had to get up that morning without her better half. After nearly 60 years of marriage how do you crawl out of bed knowing that the person your whole life has been built upon is no longer there? How do you face your own existence anymore? I just cant figure out how she does it. I have been married a mere 6 years and can't imagine not waking up to my husband everyday. If my husband passed away I am quite certain that I would need copious amounts of medication to coax me from my bed. Family members would have to approach my bed calmly and quietly with an outstretched handful of Xanex in the same way you feed the skittish goats at the petting zoo.
Growing up, my sister had these two guinea pigs. Disgusting rodents, but that's not my point. They were soul mates. They ate together, ran on their little wheel together, and dug in their cedar shavings together. A happy couple. But one day, one of the pigs reached the end of his road and died from some sort of natural causes. The other guinea pig, although healthy, up and died within a few days. We always agreed that thing died from a sheer broken heart- and I can see why. If I were married to Zach for 60 years, surely it would be easy to suddenly perish from "unidentifiable" causes within 48 hours.
Second, I couldn't help but sit and think about my own life- who I have/will impact, and whether or not I have the relationships I want with the people I want. And inevitably, I see the negative. I can only think- I need to be a better wife, a better mother, a better sister, a better whatever my relation is to you. I think about family members that I wish would come around more often, so that I may have the opportunity to miss them at the least. I mean, after all what if I up and died tomorrow??
No, no peace is gained for me at a funeral service. I develop paranoia that any one of my family members could drop dead at any moment and leave me all alone. I start picturing my own funeral and frankly don't like the the thought of everyone I have ever known looming over my body, saying "She was a good woman.", and that's presuming that is what they would say.
But then again, some good does come from spending an afternoon hearing and/or saying over and over "I am sorry for your loss." Sitting in such sadness can open a person's eyes to so many things.
"I walked a mile with Pleasure,
She chattered all the way;
But left me none the wiser
For all she had to say.
I walked a mile with Sorrow,
And ne'er a word said she;
But, oh, the things I learned from her
When sorrow walked with me"
So maybe that is the peace I gain from a funeral- a chance to reflect, pray, and find renewal within my own self and my relationships. A reminder that life is a gift and that it should be treated as such.
Anyway, if you made it through all that, I am sorry I just wasted a minute of your precious gift that you can't get back.LOL.
I am hoping to put in that call to Lucy's doc in the morning and I will update once I hear back!
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