Friday, September 4, 2009

Thats a can of worms I dont want to open

Yesterday's changes didn't go well at all. We adjusted the concentration of Lucy's formula just slightly and that produced multiple diarrhea blowouts. We were at my mom and dad's all day and by the end of the day she had a huge welt on her behind. There was no denying she wasn't tolerating the change. I drove home the whole hour and half spinning with all the horrible thoughts of what exactly this could all mean for Lucy. It certainly doesn't mean anything good.
I wanted to update even though I am not in a position to talk about it just yet. This development of pain and formula intolerance over the last few weeks has really knocked the wind out of me. I know that things could be far worse, its not like she is dying, but in terms of her disease's course, this is all just bad bad news.

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