I have been trying to make my mind up as to whether or not we want to trail another food before Dr S. calls with her test results. I want to have a "firm and final" answer to give him, instead of being persuaded into one on the spot. There is a lot to consider and there is no right or wrong answer here. The bottom line- what is in Lucy's best interest- isn't even clear.
The only thing I AM clear on is that after this round of debate, we will be taking a long hiatus from any thoughts of another food challenge for at least a year. We spent the first two years of Lucy's life just trying to get her healthy and happy, only to take off a few months and go right into a challenge, take another few months off and bring us to date. I can accept that Lucy will have a very different life from the average person but what I don't have to accept is that its harder. For Lucy, life without food is just plain easier. We can try and try and try, fail and make life hard for Lucy or we can choose to accept things the way they are and go on with life- enjoying the playground, playdates, the sandbox, riding tricycles, everything a little kid does.
When we saw the world-known specialist last summer he told us that many of the families with children like this will often take off several years so that they can get on with life. They wait until their children are old enough to understand the risk of pain and misery and can help make a decision about what to do.
What I am unclear about is when to throw in the towel. Do we give this one more shot and then take a break, or do we just call it quits for a while now? I really don't know. I'd like to be able to tell Lucy a year from now that we gave it our absolute best shot but in the end her and food weren't meant to be friends. I also don't want to put her through any more misery than I have to.
I should have a few more days before Dr S. calls with her results, and I am sure until then I will continue to debate.
Saturday, August 8, 2009
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