Tomorrow, when Lucy gets out of bed, she will be 3!!! That seems so grown up. I guess I will finally have to stop referring to her as "The Baby" and telling Zachary that he needs to be patient with Lu's antics because shes a baby. I will have to find another excuse to explain this precocious diva's misbehavior!
This year has been a roller coaster, as has been the previous years. We have had periods of running on high that were a blessing and we have had clear periods of running on low(which is where we have been the last few months). We've seen some major improvements with Lucy's dermatographism and environmental reactions this year, which is a huge gift. But as it stands now we see nothing but a decline in her GI health. I have complete faith that she will turn around and get back on track, but having patience during the wait is a challenge when your child is losing weight.
I wonder exactly what this year will bring. How long will things continue to decline and just how good will things get once she pulls out? I just never know what God has in store for us with each year. When I was pregnant with Lucy I never dreamed that anything at all could be wrong with her. Heck, even when she started vomiting in the nursery after being born I still never thought something could be wrong with my baby- after all, other people have babies with problems, not mine.
Life with Lucy has truly been a learning experience for us all in so many many ways and I will never take that for granted. I will never take my little girl for granted. With each passing day I see my little girl as more and more of an amazing miracle. I am so very proud to be her mother.
Every time someone says that I do such a great job as a mother I simply think, "Its this child. Shes doing a great job." Shes a fighter. She doesn't wallow, complain, or pout. She gets up everyday and plays like any other kid despite having a case of the "stomach flu", despite being deprived of food of any kind, despite the social isolation. She never gives up, quits, or gives out on me. She has a strength that I admire.
As an infant all of her days, weeks, and months were a blur to me. Everyday was the same monotonous drone of watching my baby suffer in agony with no cure in sight. Feeding my daughter was enough to bring me to tears on any given day. She would curl her precious lips around her bottle, breath rapidly, then cry out in pain with a whimper that ripped my heart out. During her feedings the most I could get into her was an ounce at a time before she would begin to choke, gag, and vomit. But an hour later she was always willing to try again, and every hour after that she would try again and again and again in order to get the nutrition that her body so desperately needed. So that is what we did, feed around the clock. Miraculously Lucy avoided a g-tube when the doctors couldn't hold any optimism at all that she could avoid it.
I know that no matter what comes Lucy's way, she will work harder than I can imagine to overcome it- shes been doing it since birth. I have no idea what this next year will bring for Lucy. I have no idea exactly what I will post about on her 4th birthday. I know that at every birthday I post that I am amazed by my child, and I predict that next year I will post the same because I am truly amazed everyday by my daughter and the many gifts she has brought to our life.
This year has been a roller coaster, as has been the previous years. We have had periods of running on high that were a blessing and we have had clear periods of running on low(which is where we have been the last few months). We've seen some major improvements with Lucy's dermatographism and environmental reactions this year, which is a huge gift. But as it stands now we see nothing but a decline in her GI health. I have complete faith that she will turn around and get back on track, but having patience during the wait is a challenge when your child is losing weight.
I wonder exactly what this year will bring. How long will things continue to decline and just how good will things get once she pulls out? I just never know what God has in store for us with each year. When I was pregnant with Lucy I never dreamed that anything at all could be wrong with her. Heck, even when she started vomiting in the nursery after being born I still never thought something could be wrong with my baby- after all, other people have babies with problems, not mine.
Life with Lucy has truly been a learning experience for us all in so many many ways and I will never take that for granted. I will never take my little girl for granted. With each passing day I see my little girl as more and more of an amazing miracle. I am so very proud to be her mother.
Every time someone says that I do such a great job as a mother I simply think, "Its this child. Shes doing a great job." Shes a fighter. She doesn't wallow, complain, or pout. She gets up everyday and plays like any other kid despite having a case of the "stomach flu", despite being deprived of food of any kind, despite the social isolation. She never gives up, quits, or gives out on me. She has a strength that I admire.
As an infant all of her days, weeks, and months were a blur to me. Everyday was the same monotonous drone of watching my baby suffer in agony with no cure in sight. Feeding my daughter was enough to bring me to tears on any given day. She would curl her precious lips around her bottle, breath rapidly, then cry out in pain with a whimper that ripped my heart out. During her feedings the most I could get into her was an ounce at a time before she would begin to choke, gag, and vomit. But an hour later she was always willing to try again, and every hour after that she would try again and again and again in order to get the nutrition that her body so desperately needed. So that is what we did, feed around the clock. Miraculously Lucy avoided a g-tube when the doctors couldn't hold any optimism at all that she could avoid it.
I know that no matter what comes Lucy's way, she will work harder than I can imagine to overcome it- shes been doing it since birth. I have no idea what this next year will bring for Lucy. I have no idea exactly what I will post about on her 4th birthday. I know that at every birthday I post that I am amazed by my child, and I predict that next year I will post the same because I am truly amazed everyday by my daughter and the many gifts she has brought to our life.
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