Sunday, January 9, 2011

Update #2

We are still moving along with the Elecare formula. Lucy is on her last day of 1/2 new and 1/2 old and tomorrow we will move on to a 2 to 1 ratio. We don't have any major symptoms of rejection, like vomiting, diarrhea, or screaming constantly. That's a plus. I am honestly surprised how well things are going! However, I am still nervous. We are only at 1/2 the volume and at a diluted concentration of 26 calories per ounce, but she has some minor issues that I imagine will get worse as we increase the volume of Elecare she's getting in a day. Then again, maybe they won't.

Overall, it looks like things are slowing down a bit for her digestively. So far, its nothing overwhelming and I expected it with the change. Elecare has quite a bit more fat than her current formula and fat tends to leave the stomach more slowly. Hopefully once she is on 100% Elecare her body will figure out how to empty it out faster, otherwise that GJ tube will be in our sites sooner rather than later!

I know it probably sounds like paranoia to be so watchful for symptoms that may or may not exist. But, at this point one thing we have learned is that when Lucy is exposed to something she can't handle she will gradually lose more functioning of her GI tract. The faster we catch it, the more functioning we keep. If I ignored symptoms for months I run the risk of having her get really sick and then never fully return to normal.

If you followed Lu during "The Lollipop Trial of '09" you might be aware of what I am describing- we tried lollipops, ignored problems that were cropping up believing they were unrelated, and later Lucy became really sick and never fully returned to her old normal. She developed a volume intolerance and it was the start of the downward slope that eventually led to the g-tube.

At this point, I am just trying to be realistically cautious so that Lucy doesn't have an even worse year as compared to the last.

I know its not much information, but figured I would try and update anyway. Thank you for checking in on Lucy!!

No comments: