Update

Dr. G called us this afternoon after I left him a more "distressed" message this morning mentioning the 2 lb weight loss.

He agreed right off the bat that the Elecare was not an option and we were calling it a fail. So that left us to a discussion about where to go next. There is one other elemental we haven't tried that we didn't previously consider because its very low in fat. However, with other options being scarce, Dr. G decided to discuss with some colleagues, do some research, and get back to me. He ended up calling me back and agreeing to it! So we are going to give a formula called Pediatric Vivonex a try. I am hoping and praying that we have success. I don't know how much worse her nutrition and weight can get before our doctors take more drastic measures.

After thumbing through Lucy's records, Dr. G is also ordering another Upper GI series. Apparently, when Lucy had that procedure at 7 months old it was not completed because her stomach took so long to empty. I remember we went and we got stuck waiting for an eternity and having to go back in to see if anything had happened, but nothing was. After about an hour or more they told us everything was okay and we could go home. So much for that! So now Dr. G wants it redone so we can get a better idea of how long its taking for her stomach to empty- and if that is, in fact, the issue.

This morning I switched Lucy back to her 1+ since I have about a month's worth stock piled in the basement. Shes still feeling lousy but better than yesterday I think.

Thank you all so much for checking in on Lucy!!