Monday, August 1, 2011

Whew! We had a busy weekend! A good kind of busy though!

Since Friday was Zachary's birthday I didn't want to post the update on Lucy's behavioral psych appointment that day.

Things actually went well and it became startlingly obvious that Lu has a hard time dealing with just about everything that goes into her health problems- from fear about upcoming procedures and doctors appointments, to anger and resentment for all her pain and food deprivation. The doctor also felt it was a good possibility that a lot of Lucy's issues may stem from the fact she is not getting the hydration or calories that she needs- leading her to steal food, which causes more pain and more irritability. So, hopefully, once the GJ tube is in and her feed rate can be increased, things will start to improve on their own.

The doctor turned out to be very understanding and has a history of working with GI patients at the hospital. I was initially concerned that the whole idea of training Lucy to ignore pain wasn't the best thing for her. The doctor agreed that it may not be the best idea to solely take that route with her treatment. Lucy already has a hard time expressing herself without being angry, so a middle ground will have to be reached.

So, we are scheduled to go back in two weeks. Hopefully, all this will lead to some positive results for Lucy.

Lucy's GJ placement is set up for Wednesday morning, bright and early. I will update again soon!

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