I just got off the phone with our allergist, Dr S, and we've decided that cantaloupe is a no go. He seemed disappointed. Disappointed doesn't even begin to describe how I feel about it.
Our first day was great, Lucy was so pleased to eat a food. We started off with just a small bit, but by the next day Lucy was laying on the couch under her Tinkerbell blanket saying her belly hurt. After that she had a lot of trouble swallowing it. She would hold the cantaloupe in her mouth and chew for an hour before spitting it into the trash. By the third day the diapers started and by yesterday Lucy was flat our refusing to even touch the cantaloupe. Her already low formula intake dropped even lower- from 24 ounces a day(when she SHOULD take around 30) to around 14 ounces a day.
The good news here is that Lucy has no interest in the cantaloupe at this point so there wont be any tears about losing it.
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Why the page?
I started up this page in order to continue keeping our family and friends updated, especially on our daughter Lucy. We truly appreciate the love and support we get from those who always seem so concerned for our daughter and try to do our best to keep everyone informed as things change!
Lucy
A Little About Lucy...
Lucy had a very normal birth and pregnancy, however, before we could even get home from the hospital with her she began having health problems. Immediately after birth Lucy began to deal with continuous vomiting, feeding refusal, GERD, severe stomach pain, and diarrhea. She was underweight and in constant pain by the time she was 2 months old. Lucy was quickly put on an amino acid based formula as our doctors searched for answers. After years of tests and continual health problems, Lucy was sent to an out of state hospital for specialized testing. Her diagnoses currently include GERD, Sandifers Syndrome, Asthma/RAD, Raynaud's Phenomenon, Failure to Thrive, Visceral Hyperalgesia, Delayed Gastric Emptying, and small bowel dysmotility. Lucy is now 5 1/2 and remains unable to eat anything at all by mouth. In June of this year she had a procedure called a Roux en Y in order to surgically place a feeding tube into her small bowel. She is on continuous feeds into her small intestine via a feeding pump, and her stomach is drained most of the day into a separate bag. Despite everything, Lucy still manages to live her life very much like your average 5 year old. She loves ballet and is learning to read! Her strength amazes us everyday.
Zachary
A Little About Zachary....
Hes our silly little guy that always keeps us laughing. Hes a protective big brother to his baby sister and is an easy going guy. Zachary has been diagnosed with Non IgE allergies to corn, milk, soy, and gluten after dealing with years of slow growth and stomach pain. He takes it all in stride though and never complains! Zachary has also been diagnosed with PDD-NOS, an autism spectrum disorder, as well as an anxiety disorder. We happily homeschool him and he is making great strides with his learning, social, and physical delays. He loves legos and Harry Potter, and is doing great with reading and drawing. Hes our happy little man and we wouldn't have him any other way!
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