We got x-rays of Lucy's abdomen yesterday. She cried through the whole thing. Her fear of doctors makes just about any exam or appointment full of anxiety and tears. I cringe every time I need to haul her in for anything anymore. I wish everything would stabilize so we can just relax the way the tube was supposed to help us to relax. Things just aren't getting better.
Unfortunately, despite my medical degree from Google, I am unable to read the x-rays and figure out if she has some sort of abnormality. We'll be stuck trying our hardest to deal with things until Tuesday morning when we see Dr G again.
Lucy does great as long as she doesn't have to eat- by tube or mouth. Her stomach just isn't emptying right and I usually get stuck trying to empty out her stomach in the mornings when shes been hooked up to the pump. This morning she went potty and it was clear she just isn't digesting right. She keeps crying that her back hurts and she gags when she eats.
I feel horrible. She feels horrible. I am so sad to see my Lucy crying so much and so unhappy. I try my hardest to not be that "crazy hysterical mom" and be calm, but right now that's a struggle. Things were supposed to be so much better by now. She was supposed to be gaining weight and running me ragged with all of her new found energy.
Sorry this update is depressing and drama filled. I guess I am just tired. I caught a cold this week and with all this uncertainty looming overhead its getting the best of me. The two theories Dr G gave us about why Lucy is having such a hard time were not good- we're facing either an obstruction or a shut down of Lucy's stomach- neither are good news. I am still holding out hope that she can turn this around and things will normalize.
Hopefully my next update will be a lot more upbeat, with good news about Lucy's progress, I hope I hope!
As always, thank you for checking in on Lu!!
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