Update

We seem to be on a better track since this weekend. I cut Lu off the pump for a while to give her stomach a break and when she was up and moving around I decided to start her back on slowly. It was hard watching her feel so sick over the weekend that she didn't want to play or even move.

Right now I have her on 30mL an hour pretty much around the clock. If I push her any harder she lays down and starts crying that she needs to throw up. I am going to slowly try again to move her rate up every few days in the hopes this will improve. Even if we run her 24 hours a day on the pump, at 30mL an hour she STILL isnt getting enough calories.

To make things more complicated is the fact that our medical equipment supplier was dragging their feet trying to get us a super mini backpack(an appropriately sized backpack for Lu to carry her pump around in) instead of the adult sized one. Lu is stuck lugging around a backpack that is nearly as tall as she is and its making it really hard for her to get around. I took it upon myself to order one from another supplier on my own, and pay out of pocket so that she can have one within the next week. I hope it arrives soon!

Thanks for checking in on Lucy!!