A Long Hard Day

Yesterday was a disaster. It was a bad day of epic proportions.

Things have recently been going a bit downhill with Lucy. Shes been bloating up, complaining of "shooting fings" in her belly, staying up at night, and regularly saying her "legs are breaking". The night before last she was laid out on the floor, toes pointed, arching her back, and screaming that her legs were hurting her so badly.

When her pain starts to get out of control and starts wearing on day after day, Lucy gets angry. Its like having a colicky 4 year old I swear. When you put a little kid under so much pressure, they of course, crack.

Yesterday morning, to make things worse, she got a hold of a piece of pizza. Lucy keeps a vigilant eye out for any rare opportunity to grab food and never misses it.

Within a half hour she was running to the bathroom over and over and over again. I kept her off of feeds in the hopes it would stop quickly and then started her on a homemade pedialyte solution to keep her hydrated. This poor kid must have run to the bathroom 12 or so times in a very short window of time. I felt so bad for her, but tried to explain this is why Mommy, Daddy, Dr. B, and Dr. G won't allow her to have food- we want to protect her.

She spent the rest of the day an emotional mess. It was hard. For her and for me. When she wasn't curled up in a ball in her comfy chair, she was screaming, crying, and lashing out.

She slept alright last night, so hopefully today will be a far better day.

Her appointment with Dr. G is next week and her pain issues will be the biggest concern I bring up. Hopefully, Dr. G will have some good ideas about what to do next so things can get better for Lu.

As always, thank you for checking in on Lucy!