Things are going okay around here. We've hit some bumps but nothing that is decidedly awful.
We started pedialyte yesterday morning at 5 ccs an hour (an ounce is 30 ccs). Lucy had been in a great mood. Chatting with doctors and nurses, eagerly venturing out to the playroom to cook soup in the play kitchen. But as the day went on Lucy became more and more irritable and hit her magic morphine button every chance she got.
She was fairly distracted for a few hours when our tubey friends, M and R came to visit. They brought us a tubey buddy they made themselves, which is a stuffed animal with all the same tubes and buttons Lu has! She absolutely loves it!!! It was so great to have our friends here just to hang out and play. We are so glad they came.
Once our friends left it was clear Lu was spent. Shes the worst about expressing pain. Lucy knows full and well complaining gets you more tests, doctor visits, and medicines. She tends to hide her pain and act out emotionally.
So, by yesterday evening I had a fair idea something was going on when my feisty little girl became unbearably unhappy. We all tried asking, letting her know we wanted to help. She refused and told us that she wouldn't say because we would just tell the doctors on her. Smart kid.
She did finally come forward and let us know where and how she is hurting, however, its difficult to know for certain its the feeds that are bothering her.
Today we will trudge on. We will begin formula at some point today on the same rate. Its a wait and see approach from here. Slow and steady.
No comments:
Post a Comment