Yeah, I know, I have completely stopped posting here lately. We have so many things going on right now I have no idea what I should be most stressed about at the moment. I have no idea how to post about one worry and yet not another, so instead I just haven't said anything while we sort through things here.
But, here's the lowdown on Lucy here lately:
Lucy has made no progress on the health front. Shes not sleeping well at all and her mouth sores are still wreaking havoc on her poor lips. Her Raynaud's remains in full effect, but fortunately is not causing her any agony (maybe some discomfort but certainly not agony). And I cant tell whether its me being paranoid with worry at this point but I think she may have lost a bit of weight.
Our big appointment with our brand new top of the line GI specialist is on Friday and I am excited/worried/nervous/scared/eager to hear what he has to say. I don't know what it is I WANT to hear from this man, but I do know that I DON'T WANT to hear him say something to the effect of "I don't know what is wrong and unfortunately due to her condition I cannot offer any solutions."
I'll post again once we get back from our visit! Thanks for checking in!
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