Home!

We were discharged Tuesday afternoon! Sorry its taken so long to update. Since this was an unplanned stay I had so much housework to catch up on. The house was a mess and the laundry was piled up!

Monday night was long and obnoxious. Due to a resident's mistake we had to do a blood draw at 1 in the morning to get labs that weren't taken when they were done at 10:30am the previous day! And trust me, this was not the first mistake of our five day stay that resulted in chaos and confusion. New residents start in July if you didn't know, so August is not the best month to go inpatient with a medically complicated child!

But alls well that ends well and on Tuesday morning we got AMAZING news- our insurance is going to start covering Lucy's formula again at the original 90% they were before!!

After appealing and appealing, calling and calling, we used a health advocate to review our case and work with our employer and our insurance company. They were able to get them to adjust whatever the mistake was and correct the issue!

I came home and put in an order right away, but we have to wait for reauthorization, so we are still crossing our fingers it works.

Thank you all so much for the prayers and thoughts! We are so so so happy to be home.