Waiting Cautiously

Lu is hanging in there. Not too much different to update on:

I stopped the new medication. It didn't seem to do anything (we were told most see results in 24 hours, but it would take Lu up to 48). About the only thing we saw were some episodes of explosive..well, you know.

I started her on full strength formula today, just to see where we were at. She ended up with a case of bad bad watery..well, you know....and her bottom was so sore tonight she could hardly get to sleep. Her j-tube sight also started leaking badly, soaking through her shirt multiple times, and she started complaining her belly was hurting again. Not to mention, she was cranky cranky cranky most of the day until I took her off the pump (then shes all sunshine and roses).

So it's back to half strength formula we go.

Shes set up for an appointment on Tuesday with her GI, who has been out of town since this whole pseudo obstructive episode began. Hopefully he's going to have some advice or direction in which to go.

Thank you so much for checking in on Lu and keeping her in your thoughts!!