Sooo, here we are, inpatient again already...
I noticed Lu having trouble with her feeds early on this week. She complained of pain when running on the pump and was looking more distended than usual, in a lumpy sort of way.
By Wednesday I noticed a small raised lump on her left aide, about an inch away from her new j-tube. She also had been hardly sleeping and was begging to stay off the pump more and more.
Thursday the lump was even bigger and began to turn red. Anytime she was on the pump she was hunched over in pain. After calling her surgeon's nurse, we were told to bring her into the ER.
It looks like she formed a blockage and on top of that she has cellulitus near her tube site.
Shes being treated with IV antibiotics, bowel rest, and a clean out. But, as always, Lu has proven to stump our doctors. At this point the cellulitus is improving and the blockage is cleared, yet she remains unable to use her j-tube.
They've x-rayed over and over looking for another blockage near the newly constructed portion of her small intestine but are unable to find anything.
The plan for tonight is to continue with bowel rest and SLOWLY start feeds in the morning. Then we will go from there!
This has definitely been rough on Lu. Shes been in a lot of pain at times, vomiting, and had a LOT of tests and treatments in only a few days. She is really holding up well though and was so happy she could have ice tonight since she is on a drainage bag!
As always, thank you for following our blog and keeping Lucy in your thoughts!!!
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