Wednesday, August 15, 2012

Long Long Long Day

We just returned from a LONG day at the hospital.

Lu struggled all weekend with pain, which continued into Monday. Her GI is out of town so I couldn't get ahold of him. I took her to our wonderful pediatrician who felt she needed to be seen in the ER this morning to get immediate attention. She had too much distention, too much pain and tenderness in the abdomen, too much nausea, and too much pain with feedings to wait until our GI came back into town.

We initially went to our therapy appointment this morning with the intention of going down to the ER afterwards if the pain was still an issue. But Lu got about 20 minutes into her session and began crying her belly hurt so much. Off to the ER we went.

After the x-ray everyone was pretty confused. The films showed that she had severely dilated bowels and huge pockets of air. All of this indicates an obstruction, yet they couldn't find one on any of the films. So, round and round they went, passing around the x-ray until it made its way to the attending GI who determined Lu is having a pseudo obstructive episode. Basically her intestines act like there is a blockage when there really isn't one. Its painful and complicated.

The best thing for us to do is to dilute down her feeds to 1/4 strength with pedialyte and begin using a medicine that will hopefully help her motility to wake up again. Other than that, we wait it out, trying to keep her hydrated and comfortable while it passes.

Hopefully she can tolerate these meds and her body will start cooperating again quickly!!

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